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Warnink-Kavelaars, J., de Koning, L. E., Rombaut, L., Alsem, M. W., Menke, L. A., Oosterlaan, J., Buizer, A. I., Engelbert, R. H. H., & On Behalf Of The Pediatric Heritable Connective Tissue Disorders Study Group (2021). Heritable Connective Tissue Disorders in Childhood: Increased Fatigue, Pain, Disability and Decreased General Health. Genes, 12(6). https://doi.org/10.3390/genes12060831

Warnink-Kavelaars, J., Beelen, A., Goedhart, T. M. H. J., de Koning, L. E., Nollet, F., Alsem, M. W., Menke, L. A., & Engelbert, R. H. H. (2019). Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs. European journal of pediatrics, 178, 1883-1892. https://doi.org/10.1007%2Fs00431-019-03469-7