Centre of Expertise Urban Vitality
L.E. de Koning (Lisanne)
-
Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders
And the Pediatric Heritable Connective Tissue Disorders Study Group (2023). Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders. American Journal of Medical Genetics, Part A, 191(7), 1792-1803. https://doi.org/10.1002/ajmg.a.63204
-
An exploratory study of clinical characteristics and gait features of adolescents with hypermobility disorders
de Koning, L. E., Scheper, M. C., Ploeger, H. E., Warnink-Kavelaars, J., Oosterlaan, J., Bus, S. A., & Engelbert, R. H. H. (2023). An exploratory study of clinical characteristics and gait features of adolescents with hypermobility disorders. Gait and Posture, 100, 222-229. https://doi.org/10.1016/j.gaitpost.2023.01.001
-
Physical activity and physical fitness in children with heritable connective tissue disorders
on behalf of the Pediatric Heritable Connective Tissue Disorders Study Group (2023). Physical activity and physical fitness in children with heritable connective tissue disorders. Frontiers in Pediatrics, 11, Article 1057070. https://doi.org/10.3389/fped.2023.1057070
-
Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health
Warnink-Kavelaars, J., de Koning, L. E., Rombaut, L., Menke, L. A., Alsem, M. W., van Oers, H. A., Buizer, A. I., Engelbert, R. H. H., Oosterlaan, J., & Pediatric Heritable Connective Tissue Disorder study group (2022). Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health. American Journal of Medical Genetics - Part A, 188(7), 2096-2109. https://doi.org/10.1002/ajmg.a.62750
-
Heritable connective tissue disorders in childhood
Warnink-Kavelaars, J., de Koning, L. E., Rombaut, L., Alsem, M. W., Menke, L. A., Oosterlaan, J., Buizer, A. I., Engelbert, R. H. H., & On Behalf Of The Pediatric Heritable Connective Tissue Disorders Study Group (2021). Heritable connective tissue disorders in childhood: increased fatigue, pain, disability and decreased general health. Genes, 12(6). https://doi.org/10.3390/genes12060831
-
Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs
Warnink-Kavelaars, J., Beelen, A., Goedhart, T. M. H. J., de Koning, L. E., Nollet, F., Alsem, M. W., Menke, L. A., & Engelbert, R. H. H. (2019). Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs. European Journal of Pediatrics, 178, 1883-1892. https://doi.org/10.1007%2Fs00431-019-03469-7
-
Children and adolescents with Marfan Syndrome
de Koning, L., Warnink, J., Scheper, M., de Vries, J., Menke, L., Rombaut, L., & Engelbert, R. (2019). Children and adolescents with Marfan Syndrome: lessons learned from Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders regarding chronic pain and fatigue. Poster session presented at European Pediatric Physiotherapy Congress, Utrecht, Netherlands.